Title
DOH AO Institutionalizing Renal Disease Registry
Law
Doh Administrative Order No. 2009-0012
Decision Date
May 27, 2009
The Department of Health establishes the Philippine Renal Disease Registry to systematically collect and manage data on chronic and end-stage renal disease patients, enhancing health planning and policy formulation through collaboration with various healthcare facilities and professionals.

Scope

  • Data collection from all dialysis units, transplant centers, and hospitals managing kidney patients nationwide.
  • Applies to private and government health facilities and professionals including:
    • Hemodialysis Centers (free-standing and hospital-based)
    • Peritoneal Dialysis Units
    • Transplant Centers
    • Hospital facilities with renal biopsy capability
  • Participating personnel include nephrologists, transplant surgeons, pathologists, internists, residents/fellows in nephrology and transplantation, nurses, and medical technologists.

Objectives

  • Institutionalize and strengthen the PRDR under NEC-DOH.
  • Formalize the roles of NKTI through REDCOP as implementing arm.
  • Engage participating health facilities with defined roles and responsibilities.

Definitions

  • Partnership: Voluntary cooperation among public/private sectors and stakeholders for disease surveillance.
  • Privacy: Patient's right to control disclosure of personal info.
  • Confidentiality: Public health workers' obligation to restrict patient info access.
  • Dialysis: Removal of dissolved substances from patients by diffusion; includes hemodialysis and peritoneal dialysis.
  • Patient: Individual admitted and receiving care in dialysis clinics/hospitals.
  • Government hospital: Government-operated hospitals.
  • Private hospital: Privately owned hospitals.
  • Institution/hospital-based clinic: Clinic operating within a health institution.
  • Free-standing clinic: Independent clinic/center.
  • Training Institution: Facility providing subspecialty training in nephrology/transplant.

Policy Statements

  • PRDR aligns with DOH’s technical leadership and National Objectives for Health and Millennium Development Goals.
  • Data must be useful, applicable, simple, and flexible for integration.
  • Emphasis on partnership and shared responsibility.
  • Maintain privacy and confidentiality of patient information.
  • DOH owns the PRDR data; data access controlled through REDCOP with guidelines.

Implementing Mechanism

  • PRDR comprises ESRD Registry (hemodialysis, peritoneal dialysis, transplant data) and Chronic Renal Disease Registry (renal biopsy data).
  • National Epidemiology Center (NEC-DOH): Supervises, funds, analyzes, disseminates data, coordinates with NKTI-REDCOP and other stakeholders, monitors implementation, chairs review committees.
  • NKTI-REDCOP: Manages PRDR operations, ensures confidentiality, prepares reports, liaises with agencies.
  • Bureau of Health Facilities and Services (BHFS): Enforces patient registry requirements in dialysis clinics.
  • Participating facilities: Dialysis centers/units, hospitals/training institutions, DOH’s Centers for Health Development (CHD), Philippine Society of Nephrology (PSN), and Philippine Health Insurance Corporation (PHIC).
  • Operational standards in PRDR Manual of Procedures 2006.
  • DOH allocates annual funds to support PRDR operations including salaries, materials, and regional activities.
  • NKTI-REDCOP submits annual reports to NEC and quarterly updates on implementation and budget.
  • Monitoring is conducted by REDCOP management and NEC’s supervisory assessments; issues addressed via official channels.

Repealing Clause

  • Any inconsistent existing orders are repealed or superseded by this AO.

Effectivity

  • Effective upon approval and fifteen days after publication in the official gazette or general circulation newspaper.

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